This Just Feels Heavy.
October 5, 2018
Balancing the burden of illness in a family. Everyone is pulling the weight. … More This Just Feels Heavy.
Category: Awareness
I’m a Bit Prickly.
September 2, 2018
So, I have been doing this thing. You know, where, you trade one protective instinct for another. I mean, let’s be honest, I can downplay it, and give you all the reasons, but the reality is, I have been approaching the world weapons drawn. Over the past year, a lot has been blamed on my … More I’m a Bit Prickly.
This Girl, Endures
August 6, 2018
Describing invisible chronic illness to someone who does not deal with it is fairly difficult. There is a limit to their understanding and often to their willingness to engage in the conversation. It is understandable. No one wants to be party to another person’s misery. And as such, we often find comfort with other people … More This Girl, Endures
Surprise! #EDS #Dysautonomia
May 30, 2017
I had a seizure today. You know you live with a chronic illness when you begin finding humor in episodes. I sat across from my husband this morning having coffee. The kids were still sleeping and we were enjoying a little quiet. Out of nowhere, I spit a mouthful of coffee all over him, and … More Surprise! #EDS #Dysautonomia
No Way Out
February 28, 2016
I want so badly to say things are improving, and I want to be able to be honest about it. I am venting my frustrations and anxieties here because I just can’t burden another person with sitting through my list of complaints. I have found that a large part of maintaining relationships is pretending to … More No Way Out
Do What You Can Do
February 14, 2016
I am talking to myself today. But I have decided I will share this with my fellow #zebras. I recently went back to work, and suggested I might chronicle how this went for someone struggling with Ehlers-Danlos and Dysautonomia. I would suggest first and foremost that if I did not have the understanding and patient … More Do What You Can Do
Jumping Back In
January 7, 2016
I have made the decision to go back to work. Outside of my home. I have made real progress over the last year, and I am going to get my toes wet with some part time work, just to be sure, and then hopefully by the fall, I will be ready to work full time. … More Jumping Back In
But I did Come Back to Life
December 4, 2015
I can tell you the exact moment I came back to life. I can give you an image. I hear people talk about their experiences with death. I have no recollection of death whatsoever, but I remember leaving it. I rested for a bit today trying to shake out of the stress of begging for … More But I did Come Back to Life
Can I Get a Little Glue?
August 10, 2015
Ehlers-Danlos Syndrome is often symbolized through the use of zebra stripes. The potential explanation for this is an old saying: When you hear hoof beats behind you, you don’t expect to turn around and see a zebra. Ehlers-Danlos is classified as a rare disorder. In other words, it isn’t the horse. And while many people … More Can I Get a Little Glue?
Peerspectives 