I warned you I was coming. I gave you notice. And you persisted. I spent an inordinate amount of time being the well-mannered pet. I behaved. I sat. I stayed. I complied. Despite the pain of the leash, I softened my edges in exchange for permission. And now, as the fire pulsates in my chest … More Taking it Out in Trade
Balancing the burden of illness in a family. Everyone is pulling the weight. … More This Just Feels Heavy.
So, I have been doing this thing. You know, where, you trade one protective instinct for another. I mean, let’s be honest, I can downplay it, and give you all the reasons, but the reality is, I have been approaching the world weapons drawn. Over the past year, a lot has been blamed on my … More I’m a Bit Prickly.
To be entirely honest, I already processed. I did it quietly. Inside. Where no one was looking. I am accustomed to that. I say that, not to be critical, not to be negative, and please understand, I have no intention of it landing that way. I understand that is the nature of invisible illness. I … More Processing . . .
Describing invisible chronic illness to someone who does not deal with it is fairly difficult. There is a limit to their understanding and often to their willingness to engage in the conversation. It is understandable. No one wants to be party to another person’s misery. And as such, we often find comfort with other people … More This Girl, Endures
I had a seizure today. You know you live with a chronic illness when you begin finding humor in episodes. I sat across from my husband this morning having coffee. The kids were still sleeping and we were enjoying a little quiet. Out of nowhere, I spit a mouthful of coffee all over him, and … More Surprise! #EDS #Dysautonomia
We have pushed this narrative of the failing schools and bad teachers to the point that the general public has lost faith in the public schools, and I understand that is the end game. I get it, the powers that be want charters and vouchers under the guise of choice because there is money to be made. But here is the issue as any teacher or parent will tell you: our children are not products. Education is not a for profit industry. We don’t take children and label them as defective and return any that we think “can’t meet standards” to be educated. We educate them all. We love them all. We push them to be their best academically, athletically, artistically, and altruistically. And it is a right they all share. Educators are passionate that their students maintain that right. … More Open Letter to Betsy DeVos