I had a seizure today. You know you live with a chronic illness when you begin finding humor in episodes. I sat across from my husband this morning having coffee. The kids were still sleeping and we were enjoying a little quiet. Out of nowhere, I spit a mouthful of coffee all over him, and … More Surprise! #EDS #Dysautonomia
We have pushed this narrative of the failing schools and bad teachers to the point that the general public has lost faith in the public schools, and I understand that is the end game. I get it, the powers that be want charters and vouchers under the guise of choice because there is money to be made. But here is the issue as any teacher or parent will tell you: our children are not products. Education is not a for profit industry. We don’t take children and label them as defective and return any that we think “can’t meet standards” to be educated. We educate them all. We love them all. We push them to be their best academically, athletically, artistically, and altruistically. And it is a right they all share. Educators are passionate that their students maintain that right. … More Open Letter to Betsy DeVos
It has been a while. A long while. And I have tried really hard to stay quiet. But, in truth, I am bursting at the seams. These little quips and comments come frothing forth, and I can’t hold them in. No one likes a “Negative Nancy.” I get it. We all want people to be … More Shhh…Nope.
This election cycle has brought forth some of the most uncomfortable rhetoric I remember hearing in America in my lifetime. I purposefully use the word “uncomfortable” because there are varying degrees of disdain for what we hear and see, or rather are immersed in, daily, but in essence, we are all wanting some element of … More Sand in my Mouth
I am starting physical rehabilitation soon, and I am grateful. The geneticist has ordered a DEXA to check my bone density and referred me to a doctor to help me build strength and develop a program to help my lax joints and instability. For the first time in three years, I feel like I am … More Clear the Doorway
I want so badly to say things are improving, and I want to be able to be honest about it. I am venting my frustrations and anxieties here because I just can’t burden another person with sitting through my list of complaints. I have found that a large part of maintaining relationships is pretending to … More No Way Out
I am talking to myself today. But I have decided I will share this with my fellow #zebras. I recently went back to work, and suggested I might chronicle how this went for someone struggling with Ehlers-Danlos and Dysautonomia. I would suggest first and foremost that if I did not have the understanding and patient … More Do What You Can Do